Category Archives: health

Damn Well Unique

When I was in my early teens I was all Tippexed nails and Impulse body spray and blue mascara and the Rachel cut. I loved Art and I hated Geography and I huddled close to friends for warmth behind the library building during cross country that I never ran. I was in love with a boy who wasn’t in love with me and the best day of my life was the one when he wrote his phone number in the margin of my maths workbook.

I was naive and innocent and bright and normal until something took over. I was on Prozac before I turned sixteen. At the time I genuinely didn’t understand what was happening to me. I was trapped in a heavy misery in a heavy body that wouldn’t move thinking thoughts that I couldn’t articulate and barely seeing through the darkness. I had no idea what was wrong. I was fifteen and I had never kissed a boy and I couldn’t get out of bed or find a better way than self harming to release the pain I felt from nowhere.

And that’s where memories that are hazy become blank and suddenly I’m a year older and the Rachel cut is grown out and dyed black to match my nails and I’m wearing flared sleeves and baggy jeans and skater trainers to college where I make friends and laugh and kiss a boy.

I had a little moan about this yesterday and when writing that post and browsing YouTube I found this video. Please watch it, it really is brilliant. Brave, inspiring and something I probably couldn’t do now, let alone all of those years ago.

Thanks for letting me share your vlog Emma :)

Drag

£20,000. 20k. Twenty fucking grand of my actual own money.

Where is it?

I smoked it.

I smoked it all from sometime in my 18th year on the planet and I smoked it every single day until the pennies all rolled and clinked together and found me in this moment, writing this, blinking in disbelief at the calculator app on my phone. And? And smoking. And? And feeling pretty ashamed of myself.

Ashamed is good though, lets roll with that. Because I should be ashamed; for failing at every single attempt that I have made to give up, for smoking in full view of my child, for spending money that we don’t really have and could certainly be put to better use, for lighting up for the first time all of those years ago, for the cigarette hanging from between my lips as I type this from behind its smokey veil of fumes.

I don’t remember why I started but I do remember buying my first packet of ten Marlborough Lights and a lighter in a shop I had never been into before or since, praying I wouldn’t get asked for ID because I didn’t possess any. I remember slipping the cellophane wrapped packet into my green handbag with polka dot lining and a clasp that never worked and walking to a pub to meet friends.

You could still smoke in pubs then and everyone did and I sat and sipped drinks and talked and laughed and felt the presence of the unopened packet in my bag under the table like you feel the stare of someone on the back of your head, making you neck prickle and your hairs stand on end.

Smoke me. Smoke meeeeeee.

Deathly sirens in a shiny box.

I remember fumbling with the plastic on the way home and the clumsy feeling of the cigarette between my fingers as I spun the wheel on the lighter to light up. I didn’t inhale, I felt the smoke fill my mouth with swirling, dancing fumes and watched with satisfaction as I exhaled the white streams into the night air.

It took me a week to smoke that packet of ten and then I was on twenty a day and smoking menthols because they looked nicer (I thought) and for the next far too many years smoking became the illusion of a crutch for whatever I needed – it was a stress reliever, a conversation starter, an excuse to get away, a social bonding tool…

Now it’s just something else to worry about as I while away hours thinking about when I can next get outside for a quick fag.

So. I’ve decided. I’m going to give up.

There. I said it.

I don’t want Beans to have a mummy with a grey pallor and tar stained fingers who smells gross and gets twitchy every few hours because she needs a cigarette for the love of god.

I don’t want to burn money anymore or be controlled by something that in reality is pretty disgusting. I don’t want every slight cold to go to my chest and leave me coughing for weeks…

Cutting down or patches or gum or whatever have failed me in the past so this time I’m going it alone. Alone and afraid and with a husband that smokes and the as yet undefined stop date of whenever we finally make the move into our house.

See, it’s in black and white now and that means I have to. So there.

Emergency

When your child hangs limp in your arms, flopping forward like a battered rag doll, it’s terrifying.

Everything leaves your body. Your breath, your mind, your soul, everything. I sat on the floor in my empty husk of a body while I clutched her as she drooped.

I said her name.

I shouted her name.

I cried her name.

And then, with a choke, she cried.

She sat up and looked at me and I came down from the place on the ceiling where I had been hovering, waiting and watching. I came down with all the force of the universe behind me and I pulled her close and rocked us both.

Ten minutes before she had slipped in the bathroom and hit her head on the side of the bath. She cried, I cuddled. She calmed down and we went through the usual routine of massage, pyjamas, cuddle, bed. No huge bump, no red marks – nothing as bad as I was expecting after the loud thwack of head meeting bath.

I put the blackout down to how frantically she was crying, how when she is wracked with gulping sobs she gets breathless. I put her to bed, sang Twinkle Twinkle Little Star when she asked and kissed her goodnight. I shut the door with tears rolling down my face. Never again do I want to feel my baby go limp in my arms while I am powerless and clueless and senseless.

Half an hour later the husband went to her when she cried. I felt something wasn’t right so I followed. And then came the sick.

Beans has never vomited before, so it really scared her. She screamed and panicked and we shushed and stroked and tried to calm her down. She started wagging her finger at herself and saying no. She was telling herself off.

Clearly she had no idea what had happened and, assuming that she had made a mess, saw fit to reprimand herself. My heart splintered, bursting out of my chest with the impact.

No sweetheart, it’s ok. You’re ok. You are just a bit poorly, you’re not naughty. You’re a good girl. It’s ok.

Her frightened eyes blink back at me.

No?

Sweetheart, you’ve done nothing wrong. It’s ok.

Oh dear.

I cuddled and shushed and paced.

We clean up as best we can and at some point it dawns on me that we should get her checked by a doctor. That’s what they tell you to do isn’t it? Isn’t it? Suddenly I feel as helpless and lost as I did when I cradled her as a newborn and wondered what I was supposed to do with her. I didn’t know whether we needed to take her to A&E or whether we were over reacting.

I remembered sitting with a friend at the age of eight in the sick bay at school, staring at the flaking layers of paint on the walls, red then blue then grey then blue, while she threw up into a mixing bowl as I held her hair back and tried to think of something else. Her mum came to pick her up and take her to hospital.

Yes. We should go.

And there we were for three hours. I naively assumed that young children – babies, she’s my baby – are seen quickly, as are head injuries. I was wrong. For three, long, torturous hours we paced and soothed and paced and cuddled and paced and sung.

We sat in the overflowing waiting room and watched the sick and injured file in; the old in wheelchairs with bandaged legs or cut arms, the young with ice packs on knees and grazes on faces, the huddled pairs of women with no obvious affliction, eyes fixed to their mobile phones.

We questioned why we couldn’t wait in the children’s area. Where the door is closed and it’s quiet and she can toddle and sit and be safe and calm. We just couldn’t they said.

We soothed, we paced, we rocked, we sung.

I tried to keep my panic at bay.

We were seen, finally, and Beans was greeted by a woman in latex gloves shining a torch in her eye. She decided this woman was not her friend and I had to pin her against my chest while her shakes and her sobs reverberated off my rib cage and through my body all the way to my toes while the torch was shined and ears were checked I could soothe and pace some until the sobs subsided.

And then, once we had been made to feel like those parents, the ones who jump at the slightest scrape, we were sent on our way. Sent back home with a leaflet telling us that with children under four you only need to seek medical attention in the case of fits or constant vomiting after a fall or bump. Back home feeling stupid and scared and stressed and upset and worried and relieved.

I know I have a lifetime of worry ahead of me, a forever of caring and loving and feeling the fear. I know that wasn’t the last time we will have to visit A&E, but I hope with every last ounce of my being that never, ever again will I have to be so helpless and scared as I was for the eternal five seconds that she hung lifelessly in my arms.

How The Rug Was Pulled From Under My Feet

Home after nearly two weeks away and trying to feel positive after my appointment with the mental health team I find myself desperately wondering how to deal with this.

Back home again and I make myself a much deserved cup of tea. As hard as it is to be here I try to keep myself positive with the good feelings of coming back. Home is my comfort blanket, where I feel most secure.

In the five years that we have been together me and the husband have lived in four different places across two different counties, this is the first house that has truly become home. I wallpapered the front room with indulgent Cath Kidston wallpaper when I was eight months pregnant, a treat with some money we had after getting married the previous summer.

I gave birth here, this will always be the house where I had my baby.

I’ve spent months framing and hanging pictures and photos, decorating Beans room to make it nice for her – I do love this place and reminding myself makes me feel a bit better about being back.

I sat on the sofa with the husband and filled him in on all that was said at my appointment. Once I had been over everything and explained things as best as I could he looked up and said ‘I’m sorry’.

‘No, I’m sorry. This is all so horrible and it’s all because of me.’

He couldn’t meet my eye. ‘No, it’s ok. None of this is your fault. I’m sorry because of something else.’

My head falls into my hands as I ask ‘what’s happened?’

Our landlord is selling the house. Not in weeks or months, our first viewing is on Saturday.

Evenings are now filled with frantic what are we going to do discussions. Do we urgently try to get a mortgage, speak to our landlord and ask him to wait while we sort it out on the promise that we will buy this house from him in a couple of months? Do we get tied up in renting again, rendering us unable to save and run the risk of the situation repeating itself?

The likelihood is that come the end of May we will have nowhere to go, no savings, no security.

Right now this is the last thing that I can cope with. On top of everything else, what do I do?

Eight Weeks

I’m back home now, back with Beans and the husband after nearly two weeks away. You can read about how I got there here.

The morning after my first night back at home I had an appointment with the local mental health team.

The main focus of the meeting was to assess my medication and get me off the awful tablets that had caused such a bad reaction.

Sat on an uncomfortable chair feeling just as uncomfortable in a tiny, windowless room I had to relay everything to the two women opposite me. I had to explain everything that has happened over the last year, everything I feel, everything I’ve done.

When the hour is finally up and all the notes are scrawled I am given a new prescription. The fourth different kind of medication in the last year. Medication that I am not allowed to start for the next few days until the last is out of my system. Then I will increase the dose slowly, building up to 150mg over the next month. Only when I make it to that dose will it start to treat my PND, within four to six weeks anyway.

Treatment and recovery will all take so much longer now I have remained untreated for over a year. They apologised for that. I wasn’t sure whether to be happy that I was finally being helped or devastated at all the wasted time.

All I could think was I have to live at least another two months like this. No effective medication, days wasted. This is all just so hard, I can’t keep surviving like this. For eight whole weeks.

But at least I am home.

Dreadful Desire

Eight days ago I held back my tears while I kissed and tweaked Beans nose before saying goodbye.

Every single second since then I have felt empty without her. The amount that I miss her manifests into a physical ache that I have to carry.

I am absolutely desperate to scoop her up, to squeeze her tight and cover her with kisses while I promise her mummy will never leave again.

But then there’s the dread.

For the last week or so I has felt so ill, my medication effects, total lack of sleep and soaring anxiety have wiped me out.

I can’t do this anymore, I’m just not strong enough.

The truth is I don’t want to go home. I don’t want to carry on how things are, I don’t have it in me anymore to pretend and fake my way through every single day. It takes every last ounce of everything I have and there’s simply nothing left to give.

I don’t know how to be a mummy, I don’t know how to carry on and I don’t know if I want to keep fighting.

I just can’t do this anymore.

Waiting

This is what misinformed care and terrible listening looks like.

20120216-081915 PM.jpg

Ok, it could be a lot worse but I have about twenty of these things littered across my body and as they’re starting to split and crack and blister they’re starting to hurt. As an added bonus I feel like I’ve been steamrollered by the flu. I haven’t stopped shaking for 48 hours.

Today I finally saw the community mental health team. I had to go over and over the last year, to say things out loud that smash my heart into tiny pieces, to explain again how little care I have had.

Now I have to wait. I’m waiting for my medication to be changed and for my reaction to subside. I’m waiting to take the first step on the long path to being better.

Goldfish

On Sunday night I noticed some red blotches on my skin, pale in the middle and with raised edges my first thought was it must be an allergy. Only there is nothing new that would have provoked such a reaction so I moved onto hives maybe. Google is both a wonderful and a terrible thing.

Yesterday more marks were slowing appearing and early in the evening I suddenly felt so awful that I took myself off to bed. I was boiling hot, shaking and felt sick.

After a few hours I was so freaked out that I called my mum and asked her to make the hours drive to our house. Believe me when I say that I never ask for help unless I’m really scared.

I really wasn’t sure if I was having the mother of all panic attacks or if there was something really wrong. That’s one of the fun things about living with anxiety, you’re never quite sure what is real and what isn’t.

Mum arrived at ours at around 9pm, by which point I was feeling beside myself with guilt for dragging her here. I still felt odd but I calmed myself down enough to go to bed with the plan of making an emergency appointment with a GP as soon as I woke up.

I slept restlessly, spooked by not knowing whether something was wrong or if my mind was just playing tricks. I questioned everything, a strange sort of panic attack, a reaction to my higher dose medication, a random virus, a nervous breakdown?

It played on my mind until I sat in the doctors waiting room next to my mum for the first time in probably a decade.

After an hours wait I was finally called in. I explained briefly what had happened and was ushered over to stand in front of a bright lamp while the doctor looked at the marks on my neck.

“I can tell you what that is’ he said, ‘if you hadn’t mentioned Mirtazipine when you came in then I’d know exactly what that is.”

“I have more on my torso and legs” I said when he told me I could sit back down again. He sighed. “Well I need to see those too then don’t I?.”

He sat at his desk and flicked through the pages of his drugs guide until his finger landed on the appropriate one.

“No, no, I know what that is. Nothing to do with the tablets at all.” I explained again how I had felt yesterday and that if he really thought it was nothing to do with my tablets that I was relieved.

“You put two and two together and got seventeen” he said.

“Mertazipine doesn’t cause anything like that. Hang on, I’ll show you on Google what it is…”

“I know young women will look at themselves in the mirror with this rash and feel low because their appearance is affected. But I can assure you, it’s nothing. It will go away on its own. Don’t worry, it can’t be transmitted to anyone you sleep with, even though it looks like it could be”.

Jesus wept.

“But my other symptoms…? I felt so bad I…”

“Oh that’s something and nothing isn’t it. Silliness. Tell me, how are things? Is there a reason why you are on this medication?”

I explained about my PND, that no it wasn’t recent, yes I had been coming to the doctors frequently for the last year, that no, no real support has been offered.

“How have the health visitors helped you?”

By this point I was frustrated, exhausted and fed up of having to repeat over and over again how hard things have been.

“You see, the health visiting team are great. If there is a rabbit in the headlights they will rush to help. But sometimes if the little rabbit isn’t receptive of that help then it can be turned away, you see? Is there a reason why you don’t like your health visitor, why you don’t want them to help you?”

Stunned silence flooded the room.

“They have NEVER called me. Another doctor told them about everything and they have made no contact” I spat back.

“Are you sure, because the rabbit…Well, I don’t believe they wouldn’t offer any support”

Neither do I. It got worse.

“Now my wife had PND. TWICE. And I’ll tell you what I told her. You need to get out. You need to speak to other women in your situation, go to baby groups. Understand how others cope. Why don’t you do that?”

His poor, poor wife.

Again I went over how my anxiety has stopped me from attending so far, but that I know that it’s important and it is something I want to do.

“No one likes to sit with a miserable woman all day.”

My mouth opened and closed like a goldfish. This is the point where I wanted to leave, I just had to get out of the stuffy little room and away from his judgement. But I sat silently, needing him to tell me what this bloody rash was before I could leave.

“Women are liars.”

This is just getting better and better.

I choked on a reply that came out as a garbled ‘excuse me?!’

“Women are liars. They all are. I’m sorry but it’s true. You see someone in the street and say ‘oh how’s it going with the kids’ and they just say how marvellous it is.”

My mouth does some more mute open and closing.

There’s a marked difference between prolonged, severe depression and telling an acquaintance in the street that everything’s a-ok.

“I will go to baby groups as soon as I am able. I will” anything just to shut him up and give me a diagnosis.

“But what will you say when everyone there asks you why you have never been before?”

“Erm, the truth”

“Are you comfortable with the truth?”

“Well if for some reason I don’t want to share my personal problems then I will side step the question won’t I. All that matters is that I go, for me and for Beans”

“So say you say you’ve recently moved to the area, as an excuse, the normal question to follow is ‘where from?’, what will you say then?”

“Can you prescribe anything for my skin or…?”

“Yes, I’ll do that now. It’s just a common condition. Nothing at all. Life is the simple cause. You know you are on a very low dose of your meds anyway don’t you?”

I’m on the highest dose, but he persists that it is usually taken at more than three times that amount.

I somehow manage to move my shocked body off the chair and out into the relative sanity of the street outside, where every remark he made clumsily spills out of my mouth to my mum.

“I am not making this shit up, mum” I implore when she stares at me in shock.

The anger subsided and I remembered that I did actually still feel ill and that I am worried. I dug out the information leaflet that’s wedged between the blister packs of tablets that I no longer feel safe taking.

Four hours later, a conversation with NHSDirect, a mental health link worker and finally a duty care officer; I cannot tolerate the dose of medication that I have been given. It was increased too suddenly and has caused this reaction. I am being seen by the team tomorrow and am to go to A&E in the meantime if my temperature rises.

How hard does all of this have to be?

Censored

Anger breeds resentment right? I have battled and battled and battled for an entire year and I have now decided that I have to use my strength (and my anger) to let the NHS know that. Because no one should have to fight so hard for care that, in some cases, really can cost lives.

For now I have omitted most of the detail of my complaint, I am giving the PCT the right to reply first. But rest assured you will know more as soon as I hear their take on the whole situation.

Dear Mr [chief exec of the local PCT],

I am writing to complain about the treatment I have received
from [everyone] from January 2011 to present.

In January 2011 I gave birth to my daughter. Prior to her birth I had informed both midwives and GPs of my past history of mental illness.

Following her birth [at least six paragraphs of things that have happened].

The last year has been an absolute living nightmare for myself and my family.

[Here are several paragraphs explaining why].

I would like the following points addressed in the response to this complaint:

[A question about my illness].

[A few questions about the implementation of NICE guidelines].

Along with answers to my questions I would also like:

[For everyone to say sorry].

[Something about standards and effective care].

Please also understand that I am seeking advice regarding [another way of progressing my complaint].

I would like you to carry out a full investigation into my concerns and provide a response in accordance with the NHS Complaints Procedure within 10 days from the date of this letter.

Yours Sincerely,

Mrs C [surname].

Does It Matter?

Sometimes I find myself in a dark place. Usually in the middle of the night while the world sleeps and my brain works overtime.

During these moments I used to sink deeper and deeper until I lost the ability to move the next day. Now I write.

I write anything and everything and nothing. I write my thoughts, my feelings, my worries and my dreams. I list my thoughts and hope that somewhere, lost amongst all the nonsense, there will be a glimmer of something that might get me through. Hope maybe.

Sometimes I schedule blog posts sometimes I just hit delete, but it helps. Putting my thoughts into some kind of order and writing them down evacuates my mind and eases my battered emotions.

Sometimes, like now, I find myself pausing. Do I really want to publish this? Do I really want to put this out there for everyone to see?

I don’t for a single second think that anything that ends up in these types of posts is noteworthy or groundbreaking but it’s me. It’s me at the very core. And that’s not something I’m particularly proud of.

I’m extremely proud of my blog. I’m extremely proud that I have a handful of dedicated readers and I thank you all from the bottom of my heart for that. Whether you comment or talk to me or send an email or whether you hover in the shadows I feel your support and it helps. My god it helps.

I’m extremely proud that I am able, strong enough even(?), to be open and honest at all times, through everything. I am extremely proud that in some small way I have managed to help others and to highlight issues that surround mental health.

But I’m not proud that this is how it has to be. I’m not proud that I’m writing something that I will never be able to show my daughter. I’m not proud that my blog is so much about our relationship and none of it is positive. I’m far from proud, I’m absolutely devastated.

I don’t like the person that this illness makes me; unreliable, angry, paranoid, flakey, desperate. I don’t like that people see me as this person – it’s not me.

I don’t want to lose friendships, I don’t want to sever opportunities, I don’t want to worry people. Some of the people hovering in the background of my readers are my parents; if they are reading this then I don’t want them to worry. I am ok. You know me, the real me, and you believe in the strength that I always seem to find but deny that I have. Don’t worry.

So I pause. I wonder whether I want to post these things. And then I wonder why not? I am worried about the same stigma that I am trying to overcome. I have an illness, for some reason that is as yet unknown to me it is important that I document it, in all it’s glory. Maybe I need a place to vent, maybe I feel it’s important for mental health to be openly discussed, maybe it’s just what I need right now.

Publishing may help one person, it may help me. Surely that’s worth more than anything I have to lose? Maybe this isn’t something that I will ever be able to share with Beans but maybe it’s the thing that’s going to help me get to a place where I can share my life with her.

Because that’s what matters isn’t it?